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The roles and experiences of family members who care for a person with substance or opioid use disorder

Background: Substance use disorder (SUD) or opioid use disorder (OUD) not only affects the person with SUD/OUD, but the entire family. Family members (FMs) who provide care to a person with SUD/OUD attempt to live with the addiction/recovery process while navigating a fractured healthcare/treatment system. The purpose of this article is to describe multiple roles and experiences of FMs. Methods: A Qualtrics survey was developed to examine FMs’ experiences and resource utilization for a person with SUD/OUD. Survey questions included open- and closed-ended questions focused on concepts related to FM status, treatment, recovery, care of minors, information/media sources accessed, and other services needed. After IRB approval participants were recruited using a convenience sample and a survey link were emailed to geographically dispersed university colleagues and community stakeholders. Results: Authenticated surveys (n=187) and demographic questionnaires were completed. A majority of the FMs were siblings or partners. FMs reported on experiencing stigma; identifying, securing, and funding treatment; seeking education/training on Naloxone; caring for the person’s minor child(ren); and accessing self-care resources. Conclusions: This study builds on prior research describing the lived of experiences of FMs and the unique needs of this population. Additional research is needed to develop resources that are easily accessible and readily available.

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Metadata

Work Title The roles and experiences of family members who care for a person with substance or opioid use disorder
Access
Open Access
Creators
  1. Erin Kitt-Lewis
  2. Marianne Adam
  3. Diane Berish
Keyword
  1. Family members
  2. Substance/opioid use
  3. System theory
  4. Treatment
  5. Resources
License In Copyright (Rights Reserved)
Work Type Article
Publisher
  1. Journal of Substance Use
Publication Date June 20, 2022
Publisher Identifier (DOI)
  1. https://doi.org/10.1080/14659891.2022.2089247
Deposited July 29, 2022

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Version 1
published

  • Created

    July 29, 2022 20:55 by Researcher Metadata Database

  • Added Main_Manuscript_Family_members_FINAL_APPROVED_4.5.22.docx

    July 29, 2022 20:55 by Researcher Metadata Database

  • Added Creator Erin A Kitt-Lewis

    July 29, 2022 20:55 by Researcher Metadata Database

  • Added Creator M Adam

    July 29, 2022 20:55 by Researcher Metadata Database

  • Added Creator D E Berish

    July 29, 2022 20:55 by Researcher Metadata Database

  • Published

    July 29, 2022 20:55 by Researcher Metadata Database

  • Updated Publisher Identifier (DOI) Show Changes

    August 29, 2022 10:11 by aee32

    Publisher Identifier (DOI)
    • https://doi.org/10.safelinks.protection.outlook.com/?url=https%3A%2F%2Fdoi.org%2F10.1080%2F14659891.2022.2089247&data=05%7C01%7Ceak114%40psu.edu%7C860e098ba11e4cbfdb7008da53444506%7C7cf48d453ddb4389a9c1c115526eb52e%7C0%7C0%7C637913850059019091%7CUnknown%7CTWFpbGZsb3d8eyJWIjoiMC4wLjAwMDAiLCJQIjoiV2luMzIiLCJBTiI6Ik1haWwiLCJXVCI6Mn0%3D%7C1000%7C%7C%7C&sdata=STUNx89LvwYtvMyI2RSaz093g6G%2BloPU6p9GgDHu1xc%3D&reserved=0
    • https://doi.org/10.1080/14659891.2022.2089247
  • Updated Keyword Show Changes

    October 03, 2023 12:53 by avs5190

    Keyword
    • Family members, Substance/opioid use, System theory, Treatment, Resources
  • Renamed Creator Erin Kitt-Lewis Show Changes

    October 03, 2023 12:54 by avs5190

    • Erin A Kitt-Lewis
    • Erin Kitt-Lewis
  • Renamed Creator Marianne Adam Show Changes

    October 03, 2023 12:54 by avs5190

    • M Adam
    • Marianne Adam
  • Renamed Creator Diane Berish Show Changes

    October 03, 2023 12:54 by avs5190

    • D E Berish
    • Diane Berish
  • Updated Description Show Changes

    October 03, 2023 12:54 by avs5190

    Description
    • Background: Substance use disorder (SUD) or opioid use disorder (OUD) not only affects the person with SUD/OUD, but the entire family. Family members (FMs) who provide care to a person with SUD/OUD attempt to live with the addiction/recovery process while navigating a fractured healthcare/treatment system. The purpose of this article is to describe multiple roles and experiences of FMs. Methods: A Qualtrics survey was developed to examine FMs’ experiences and resource utilization for a person with SUD/OUD. Survey questions included open- and closed-ended questions focused on concepts related to FM status, treatment, recovery, care of minors, information/media sources accessed, and other services needed. After IRB approval participants were recruited using a convenience sample and a survey link were emailed to geographically dispersed university colleagues and community stakeholders. Results: Authenticated surveys (n=187) and demographic questionnaires were completed. A majority of the FMs were siblings or partners. FMs reported on experiencing stigma; identifying, securing, and funding treatment; seeking education/training on Naloxone; caring for the person’s minor child(ren); and accessing self-care resources. Conclusions: This study builds on prior research describing the lived of experiences of FMs and the unique needs of this population. Additional research is needed to develop resources that are easily accessible and readily available.
    • Keywords: family members, substance/opioid use, system theory, treatment, resources
    • Background: Substance use disorder (SUD) or opioid use disorder (OUD) not only affects the person with SUD/OUD, but the entire family. Family members (FMs) who provide care to a person with SUD/OUD attempt to live with the addiction/recovery process while navigating a fractured healthcare/treatment system. The purpose of this article is to describe multiple roles and experiences of FMs. Methods: A Qualtrics survey was developed to examine FMs’ experiences and resource utilization for a person with SUD/OUD. Survey questions included open- and closed-ended questions focused on concepts related to FM status, treatment, recovery, care of minors, information/media sources accessed, and other services needed. After IRB approval participants were recruited using a convenience sample and a survey link were emailed to geographically dispersed university colleagues and community stakeholders. Results: Authenticated surveys (n=187) and demographic questionnaires were completed. A majority of the FMs were siblings or partners. FMs reported on experiencing stigma; identifying, securing, and funding treatment; seeking education/training on Naloxone; caring for the person’s minor child(ren); and accessing self-care resources. Conclusions: This study builds on prior research describing the lived of experiences of FMs and the unique needs of this population. Additional research is needed to develop resources that are easily accessible and readily available.
  • Updated

    April 04, 2024 10:21 by [unknown user]