Parents' satisfaction with a Canadian pilot clinic to reduce waiting lists for the assessment and diagnosis of autism spectrum disorder and intellectual disability in young children

Background: A large body of evidence suggest that parents of young children with autism spectrum disorder or intellectual disability experience low levels of satisfaction with the diagnostic evaluation process. This study sought to document parents' satisfaction with the services of a pilot clinic implemented in Québec, Canada. Method: Two-hundred fifty-nine (259) parents were recruited following their child's diagnosis. A mixed methods approach was used to investigate parents' satisfaction globally and with specific aspects of the assessment process. Results: Parents expressed overall high satisfaction with the assessment process. Parental satisfaction with specific aspects of the assessment process was negatively related to paternal stress, fathers' unemployment and household income and positively related to maternal stress. Conclusions: This pilot clinic could meet parents' needs at this crucial moment in their care and services trajectory. The factors associated with satisfaction in the present study may inform future improvements to its services.

This is the peer reviewed version of the following article: [Parents' satisfaction with a Canadian pilot clinic to reduce waiting lists for the assessment and diagnosis of autism spectrum disorder and intellectual disability in young children. Journal of Applied Research in Intellectual Disabilities 35, 5 p1186-1198 (2022)], which has been published in final form at https://doi.org/10.1111/jar.13012. This article may be used for non-commercial purposes in accordance with Wiley Terms and Conditions for Use of Self-Archived Versions: https://authorservices.wiley.com/author-resources/Journal-Authors/licensing/self-archiving.html#3.

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Work Title Parents' satisfaction with a Canadian pilot clinic to reduce waiting lists for the assessment and diagnosis of autism spectrum disorder and intellectual disability in young children
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Open Access
Creators
  1. Marjorie Morin
  2. Mélina Rivard
  3. Diane Morin
  4. Catherine Mello
  5. Patrick Coulombe
Keyword
  1. Autism spectrum disorder
  2. Intellectual disability
  3. Diagnosis
  4. Parent
  5. Satisfaction
License In Copyright (Rights Reserved)
Work Type Article
Publisher
  1. Journal of Applied Research in Intellectual Disabilities
Publication Date September 1, 2022
Publisher Identifier (DOI)
  1. https://doi.org/10.1111/jar.13012
Deposited February 17, 2023

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Version 1
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  • Created
  • Added Morin_Satisfaction_Accepted.pdf
  • Added Creator Marjorie Morin
  • Added Creator Mélina Rivard
  • Added Creator Diane Morin
  • Added Creator Catherine Mello
  • Added Creator Patrick Coulombe
  • Published
  • Updated Work Title, Publisher, Description Show Changes
    Work Title
    • Parents' satisfaction with a Canadian pilot clinic to reduce waiting lists for the assessment and diagnosis of autism spectrum disorder and intellectual disability in young children
    • ! Parents' satisfaction with a Canadian pilot clinic to reduce waiting lists for the assessment and diagnosis of autism spectrum disorder and intellectual disability in young children
    Publisher
    • Mental Handicap Research
    • Journal of Applied Research in Intellectual Disabilities
    Description
    • <p>Background: A large body of evidence suggest that parents of young children with autism spectrum disorder or intellectual disability experience low levels of satisfaction with the diagnostic evaluation process. This study sought to document parents' satisfaction with the services of a pilot clinic implemented in Québec, Canada. Method: Two-hundred fifty-nine (259) parents were recruited following their child's diagnosis. A mixed methods approach was used to investigate parents' satisfaction globally and with specific aspects of the assessment process. Results: Parents expressed overall high satisfaction with the assessment process. Parental satisfaction with specific aspects of the assessment process was negatively related to paternal stress, fathers' unemployment and household income and positively related to maternal stress. Conclusions: This pilot clinic could meet parents' needs at this crucial moment in their care and services trajectory. The factors associated with satisfaction in the present study may inform future improvements to its services.</p>
    • Background: A large body of evidence suggest that parents of young children with autism spectrum disorder or intellectual disability experience low levels of satisfaction with the diagnostic evaluation process. This study sought to document parents' satisfaction with the services of a pilot clinic implemented in Québec, Canada. Method: Two-hundred fifty-nine (259) parents were recruited following their child's diagnosis. A mixed methods approach was used to investigate parents' satisfaction globally and with specific aspects of the assessment process. Results: Parents expressed overall high satisfaction with the assessment process. Parental satisfaction with specific aspects of the assessment process was negatively related to paternal stress, fathers' unemployment and household income and positively related to maternal stress. Conclusions: This pilot clinic could meet parents' needs at this crucial moment in their care and services trajectory. The factors associated with satisfaction in the present study may inform future improvements to its services.
  • Updated Keyword Show Changes
    Keyword
    • Autism spectrum disorder, Intellectual disability, Diagnosis, Parent, Satisfaction
  • Updated Work Title Show Changes
    Work Title
    • ! Parents' satisfaction with a Canadian pilot clinic to reduce waiting lists for the assessment and diagnosis of autism spectrum disorder and intellectual disability in young children
    • Parents' satisfaction with a Canadian pilot clinic to reduce waiting lists for the assessment and diagnosis of autism spectrum disorder and intellectual disability in young children
  • Updated