End-of-Life Care Planning: Perspectives of Returning Citizens

Demographic shifts toward an older and sicker prison population present challenges for corrections leaders and incarcerated people. The priority of custody and control over care in prisons can deprive people of a modicum of autonomy even about expressing their end-of-life wishes. This study was undertaken to inform best practices and identify essential components of end-of-life care planning (EOLCP) for people who will likely die incarcerated. Individual interviews with formerly incarcerated people (n = 16) provided insights on EOLCP knowledge, perceptions, and future plans as each reflected on experiences while incarcerated. Zoom Video Communications were used for the interviews, and audio recordings were transcribed verbatim, verified, and deidentified prior to thematic analysis. Themes were defined and discussed until consensus was reached between the 2 researchers. End-of-life care planning themes included the following: understanding of and experience with advanced directives/care planning (AD/ACP), defining AD/ACP, timing of AD/ACP accessibility to health care resources, how to approach EOLCP in prison, advantages of EOLCP, and barriers to EOLCP. Formerly incarcerated peoples' knowledge, perceptions, and future plans revealed important considerations when developing a contextually relevant toolkit for EOLCP for people living in prison.

This is a pre-copyedited, author-produced version of an article accepted for publication in Journal of Hospice & Palliative Nursing. The published version of record [End-of-Life Care Planning. Journal of Hospice & Palliative Nursing (2023)] is available online at: 10.1097/NJH.0000000000000999.

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Work Title End-of-Life Care Planning: Perspectives of Returning Citizens
Access
Open Access
Creators
  1. Erin Kitt-Lewis
  2. Susan J. Loeb
Keyword
  1. Advance directives
  2. End-of-life care planning
  3. Formerly incarcerated people
  4. Prisons
  5. Qualitative descriptive
  6. Returning citizens
  7. Thematic analysis
  8. Toolkit
License In Copyright (Rights Reserved)
Work Type Article
Publisher
  1. Journal of Hospice and Palliative Nursing
Publication Date April 2024
Publisher Identifier (DOI)
  1. https://doi.org/10.1097/NJH.0000000000000999
Deposited April 21, 2024

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Version 1
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  • Created
  • Added JHPN-D-23-00106_-_Kitt-Lewis_-Revision_9.5.23-1.docx
  • Added Creator Erin Kitt-Lewis
  • Added Creator Susan J. Loeb
  • Published
  • Updated
  • Updated Work Title Show Changes
    Work Title
    • End-of-Life Care Planning Perspectives of Returning Citizens
    • End-of-Life Care Planning: Perspectives of Returning Citizens
  • Updated Keyword, Publication Date Show Changes
    Keyword
    • Advance directives, End-of-life care planning, Formerly incarcerated people, Prisons, Qualitative descriptive, Returning citizens, Thematic analysis, Toolkit
    Publication Date
    • 2024-04-01
    • 2024-04