"Some Greater Good Poster:" Scientific Value, Self-Determination, and Informed Consent and Informed Closure

Focus group participants agreed with established human subject research protections practices regarding consent, risk, and autonomy. However, before they consent, they would also like to know if the research will contribute to a greater scientific or public good, and after the study has concluded, they want to be informed about the results, which I term “informed closure.” I argue that the underlying ethical concern for participants is the welfare of the self, a concern which arises from the late-modern subjective meaning of personhood.

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Work Title "Some Greater Good Poster:" Scientific Value, Self-Determination, and Informed Consent and Informed Closure
Access
Open Access
Creators
  1. Snyder, Justin Allen
Keyword
  1. modernity
  2. sociology
  3. selfhood
  4. human subjects research
  5. research ethics
License Attribution-NonCommercial-NoDerivs 3.0 United States
Work Type Poster
Publication Date 2016
Geographic Area
  1. Annual AAHRPP Conference, Long Beach, CA
Deposited May 23, 2016

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Version 1
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  • Created

    November 17, 2020 00:11 by Scholarsphere 4 Migration

  • Added ftt44pm674_version1_Snyder__Some_Greater_Good_Poster.pdf

    November 17, 2020 00:11 by Scholarsphere 4 Migration

  • Added Creator Snyder, Justin Allen

    November 17, 2020 00:11 by Scholarsphere 4 Migration

  • Published

    November 17, 2020 00:11 by Scholarsphere 4 Migration

  • Updated

    February 28, 2022 22:46 by [unknown user]

  • Updated

    March 22, 2022 16:16 by [unknown user]