"Some Greater Good Poster:" Scientific Value, Self-Determination, and Informed Consent and Informed Closure Public

Focus group participants agreed with established human subject research protections practices regarding consent, risk, and autonomy. However, before they consent, they would also like to know if the research will contribute to a greater scientific or public good, and after the study has concluded, they want to be informed about the results, which I term “informed closure.” I argue that the underlying ethical concern for participants is the welfare of the self, a concern which arises from the late-modern subjective meaning of personhood.


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